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  :: Rare Disorders
Health Directory > Conditions And Diseases > Rare Disorders
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American Autoimmune Related Diseases Association
AARDA is the only nationa lorganization dedicated to addressing the problem of autoimmunity, the major cause of chronic illness. AARDA provides patient information and referrals.aarda.org
http://www.aarda.org
Contact a Family
Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.cafamily.org.uk/
http://www.cafamily.org.uk/
International Rare Disease Support Network
A community providing more than a 1000 different links to support groups for the people of all nations.raredisorders.com
http://www.raredisorders.com
Pemphigus
Background information, traditional treatments and natural medicine, plus the author's personal account.uoregon.edu
http://www.uoregon.edu
Syncope Trust And Reflex anoxic Seizures
An information and support group working together with individuals,families and medical professionals to offer information on syncopes and reflex anoxic seizures.stars.org.uk
http://www.stars.org.uk
Lymphangiomatosis and Gorham's Vanishing Bone Disease
Provides general information and a personal account, including pictures and X-rays. Also offers patient contact and an email discussion group.gorhams.dk/
http://www.gorhams.dk/
Cystinosis Foundation
Includes brochures, FAQs, medical exchange, research, and a message forum as well as details about the organization and its events, conferences and fund raising.cystinosisfoundation.org
http://www.cystinosisfoundation.org

 
 
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